Dream Shard Blog: The Scintillating Adventures of Our Household

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Tue
23
Oct '07

Bath Time!

I have a ton of pictures to get up here eventually. But today I’ll share with you pictures from Wesley’s bath this morning. Babies are darn cute naked.

Here’s Wes getting soaped up in our little pink tub. He’s pretty good natured about being soaked in nice warm water.

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Now we’re getting ready to wash his hair.

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I just get his hair wet under the faucet and then soap him up with the sponge.

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And now he’s all done!

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Wed
17
Oct '07

More about Wes and his Down syndrome

Today was Wesley’s 5-week checkup. He clocked in at 5 lbs 10 oz! Even more amazing, tonight I put him in a preemie gown (the kind that’s like a sack) and it was a little tight around his feet! He’s growing.

Last week John and I took Wes to Primary Children’s Hospital in Salt Lake City to meet with a genetic counselor. We discussed Wes’s condition of Down syndrome and went over what we can expect with him, medically, mentally, and physically.

Here are some things I learned about our baby and Down syndrome.

1. He was the product of Trisomy 21, which means there’s an extra 21st chromosome in every cell that slightly changes the development of the body and brain. The extra genetic material is a totally random thing originating with the sperm or the egg. About 95% of people with Down syndrome have Trisomy 21.

2. Any normal couple has a 1 in 800 chance of having a kid with DS.

3. Since we already have a kid with DS, our chances automatically jump to 1 in 100 for future children.

4. About 5,000 kids with DS are born every year. Eighty percent are born to moms under the age of 35.

5. People with DS are at a higher risk for certain medical conditions. The American Academy of Pediatrics outlines the probability as follows. There’s an increased risk of:

    congenital heart defects (50%); leukemia (<1%); hearing loss (75%); otitis media (50-70%); Hirschsprung disease (<1%); gastrointestinal atresias (12%); eye disease (60%), including cataracts (15%) and severe refractive errors (50%); acquired hip dislocation (6%); obstructive sleep apnea (50%-75%); and thyroid disease (15%).

That’s a scary list, isn’t it? I don’t even know what some of those conditions are. Hopefully we won’t ever need to find out. So far his heart looks good (we’ll take him to a cardiologist next month to make sure), his hearing checks out normally, and he doesn’t have cataracts. We’ve been instructed to take him to see a pediatric ophthalmologist and an ear/nose/throat specialist before he’s a year old to check up on some of those other conditions.

6. Mental impairment can range from mild (IQ: 50-70) to moderate (IQ: 35-50) and only occasionally to severe (IQ: 20-35).

7. Down syndrome kids look more like their families than they do one another.

8. Our son, like every child, will have a full range of emotions and attitudes, creativity and imagination, interests and talents that will shape his life and add color to our everyday experiences.

9. People with Down syndrome can grow up to live independent lives with varying degrees of support and accommodations needed. They can hold jobs and sometimes live on their own. I’ve talked with people locally whose DS kids have gone on to go through the temple, serve missions, and even be ordinance workers in the temple.

10. The most important thing I’ve learned is that despite the statistics, Wes could totally wow us, and probably he will. Every child will have some problems during his life. With Down syndrome, it’s a little more intimidating up front because the possibilities of what could go wrong with him are spelled out pretty frankly. But one thing I’m learning is that, like with any kid and any situation, you have to expect the best, and we’ll try to.

'

You know you’re a mom if . . .

. . . when rooting around the pockets of your jacket for gloves you discover a binkie you didn’t know was there, and it’s as exciting of a discovery as finding a $10 bill.

Sun
14
Oct '07

New Talent?

As amazed as we are by Wes’ many talents of sleeping, sneezing, and hiccupping, we’ve been trying to increase his resume fodder by helping him learn to grip things. He will grip our fingers pretty well, so much so that his little fingertips turn white, but we thought we’d take it to the next level:

with Link-A-Doos.

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Doesn’t he kind of look like a Chinese monk in this picture?

Anyway, he’ll grip it for a second.

And then . . .

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Well, we’ll keep working on it.

As long as he doesn’t get too tired.

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Here’s a shot of him with his dad in the nursery.

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Thu
11
Oct '07

Four Weeks

(Note: This post, for whatever reason, wasn’t showing up on our blog, so I am reposting it. It was originally posted on October 11th.)

Our baby’s 29 days old now. I took him in for a checkup today and he weighed 5 lbs 5 oz!

I think that’s huge, considering how little he started out. But the doctor said he’s still pretty small and I need to bring him in next week for another weight check.

Here’s a picture to give you an idea of his actual size. This is Wes wearing a preemie outfit, lying next to the same outfit in the three-month size.

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The sticker on his cheek helps hold on his oxygen tubes. But the sticker on his other cheek had fallen off, so I just took off the tubes for the afternoon. We’ll have to replace them tonight, since he’s supposed to sleep with the oxygen on.

When all your pregnancy hormones start depleting, they’re apparently replaced with the photo-taking hormones. It just goes with the territory of new momhood. I couldn’t resist taking more pictures of him today, even though he wasn’t doing much.

Although here’s Wes doing one of his favorite activities: thrusting out his arm like he’s telling us to Stop!

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And just one more cute one.

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Thu
4
Oct '07

3 Weeks Already

(Note: This post, for whatever reason, wasn’t showing up on our blog, so I am reposting it. It was originally posted on October 4th.)

Yesterday was Wesley’s three-week birthday. And tomorrow is his official due date. Hah.

He’s gaining weight well. He gained six ounces since his doctor’s appointment last week. Now he’s up to 4 lb 11 oz (with diaper on). The doctor wants us to keep him plugged into oxygen as long as he’s sleeping or in the car seat for long periods of time. I’ll be glad when that’s done with, because it gets annoying toting around his oxygen tube that’s taped to his face, and he keeps tugging at it and pulling the tubes from his nose into his mouth.

We’re adjusting to new parenthood and all the sleep deprivation that goes with it. Wes is a good kid, though, and is fun to have around. Today we took our first walk together around the neighborhood and made our first social call to one of my friends down the street. Wes was real easy, sleeping the whole time.

Next week we’ll take him to the doctor again for a four-week checkup to make sure he’s gaining weight all right, and maybe (cross fingers) the doc will let him off the oxygen.