Dream Shard Blog: The Scintillating Adventures of Our Household

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Fri
10
Jun '11

Sibling Stuff

Wes is 3 1/2 (quickly approaching 4), and Carissa is almost 10 months. She has two bottom front teeth and is getting a new tooth on top in front.

Wes likes to help Carissa play–mostly by dumping as many toys in her lap as he can find.

Carissa takes it in stride.

Carissa isn’t crawling yet but getting close. She likes to stand. If your fingers are within reach she’ll grab on and pull herself up. Today we found her standing up in her crib for the first time, clinging to the side.

The Parade of Homes is happening, which is a great excuse to walk through multi-million-dollar homes, admire the finery, and think about how much work it’d be to keep it clean. I start looking forward to Parade of Homes every year in January, so not much can keep me away. But it is a lot more effort to go with two little kids.

This year Wes gets to wear the blue booties.

Sat
28
May '11

Wes’s Words

When Wes started preschool in September he wasn’t terribly vocal. His school year just ended, and I am amazed at the words he uses. Sometimes it takes me several days of hearing the same thing over and over until I realize what he’s saying. Some of his new words and phrases are:

“Um.”

(I love that he says this sometimes when I ask him a question. “What do you want?” He’ll look pensive and say, “Um…” If I were a public speaking teacher I would probably try to break him of this.)

“Don’t!”

(I don’t love this one. It’s new as of last week and it’s probably the #1 word he says, all day long. Kind of like when he mastered “No!” Everything I try to get him to do, he says, “Don’t!” To everything the cats do, he says, “Don’t!” Even poor Carissa has to hear him tell her, “Don’t!” Maybe it’s a phase…)

“I said no!”

(I’m pretty sure this is what he’s saying. Wes bosses the cats around, and I let him. Because it’s the only thing he can even pretend to be in charge of, and they just ignore him anyway. When he sees them sniffing his food or doing anything else Wes deems inappropriate, he’ll say, “No! I said no!” That might be a little mini-me coming out in him already.)

“That one.”

(He says this a lot. It’s actually a great thing, because for the longest time I couldn’t get him to identify what he wanted. Even pointing to an object was a long time coming. So for him to tell me “that one” is pretty great.)

“Pretzel. Show. Train.”

(Wes is still at the stage where he mainly identifies objects rather than speaks in sentences. He doesn’t say, “I want pretzels.” He says, “Pretzel!” He prefers to eat his snacks in front of a show when I let him. Frequently he’ll say, “Pretzel. Show. Train.” which means, “I want pretzels. I want to watch a show. I want to watch the train show [Thomas the Tank Engine].)

“and”

(I just noticed this today. I think it’s the first time I’ve ever heard him use a conjunction. He was transferring two pear halves from a Tupperware container to his bowl. He said, “One” as he put in the first one and then… “and, two!” I was kind of surprised. And proud.)

“Me!”

(He learned this at school. When he wants to do something himself he says, “Me!” I guess independence is a good thing. While we were in line at Walmart a few days ago he pointed to Carissa and said, “Issa!” then to me and said “Ahm” [“Mom”] and then to himself and said, “Me!”)

“Stuck”

(This sounds like “Guck.” A couple times he’s been caught and it took me a while to realize he was saying he’s stuck.)

“Out!”

(Wes has a bad habit of chewing on his fingers. Interestingly, two of the other kids in his playgroup for kids with Down syndrome do the exact same thing. I’m not sure why. Anyway, we’re always telling him to take his fingers out of his mouth. Poor Carissa, who is legitimately teething and sometimes chews on her fingers, has to endure him pointing at her and shouting, “Out! Out!”)

Wes can identify a lot of body parts that John taught him: cheek, ear, chin, neck, head, hair, etc. He knows the alphabet (and the sign language for each letter) and can count one to ten. He’s great at colors and their signs. He knows shapes and is learning prepositions like “in” and “on.”

My favorite thing, of course, is when I walk in the room and Wes says, “Ahm!”

(This is Wes obviously NOT ready for bed. He’s eating a late-night snack on the counter while I clean.)

Thu
19
May '11

Preschool Program

Wesley’s preschool held their end-of-year program today. And yesterday. We actually got to go twice since he’s in both sets of afternoon classes.

Both days I met families who have kids with Down syndrome. None of these kids are actually in Wesley’s preschool (he’s the only DS kid), but one family has a 7-year-old with DS and another has a 7-month-old. It was nice to connect with their families.

The family who has the 7-year-old with DS told me that every day their 4-year-old who is in Wesley’s class would come home and tell them about his day, and that every day they would hear about Wesley. Apparently this kid and another of Wesley’s classmates liked Wes so much that they would compete to see who could be Wesley’s helper during school. I was happy to learn that he has friends at school, not only in his teacher but also his peers.

The mom of the baby with Down syndrome said that her preschool-aged son was the last picked up on the bus route, and that every day as she helped her son onto the bus Wesley (whose seat is up front) would smile and wave at her. And she said it just made her day, every day. I imagine that seeing Wes meant something more special to her after having a new baby with Down syndrome herself.

The kids sang songs and read a story together, and then we watched a DVD slide show of photos from their year.

The theme was “Spread Your Wings and Fly,” hence the bug hats (which Wes had a very hard time keeping on).

Wes did a pretty good job with the actions that went with the song they sang.

Jumping…

Rowing the boat…

Here they’re running through the woods as fast as they can. Wes liked the part that went really fast.

Wesley and his preschool teacher, Miss Rachael.

Mon
18
Apr '11

The Biggest Accomplishment

I forgot in my last post to mention Wesley’s latest biggest (in my opinion) accomplishment:

He calls me Mom.

Just this past week, he has started pointing to me and identifying me as “Mom.” He does the same thing for “Dad.” My biggest surprise this week was when I was upstairs in Carissa’s room and Wes came up the stairs calling “Ahhm! Ahhhm!” (“Mom! Mom!”), looking for me. What a cool feeling to be called Mom!

Thu
17
Feb '11

Time Flies

Wes and Carissa are getting so big. Wes is 3 1/2, and Carissa just peaked at 6 months.

Wesley’s latest thing is saying “Me!” whenever he wants something or to do something. I think he must have learned that one at school. I think it’s kind of cute and a good thing that he’s learning to express his independence.

I keep paper and crayons in a drawer near the kitchen. Wes discovered this, and he also noticed that when he would scribble a picture I’d put it on the fridge. After the first two pictures went up, he pulled out all the paper (which, thankfully, wasn’t a huge stack) and drew on all of them, each picture less elaborate than the last, and then took them one-by-one to the fridge for me to hang. We now have an art gallery.

Carissa turned 6 months on Tuesday. Once she got past the newborn stage, she was in that “little baby” stage for a long time. But lately I’ve been thinking she’s looking older, and I can kind of start to envision how she’ll look and be as a one-year-old. No, I’m not ready to think about that yet.

She is great at holding her head up. She’ll roll from her back onto her side to play with toys, but she hasn’t made it a habit to roll all the way over to her tummy. She smiles a lot and I like to make her laugh. She loves her brother, and he loves her. He likes it when we tickle her because he likes it when she smiles and laughs. And then he tries to tickle her, but he’s not really effective yet.

Sun
6
Feb '11

Wes Reading

About a year ago Wesley’s speech therapist mentioned she had attended a workshop where a woman presented a program about how to use flashcards to teach young children to read. Our therapist said it wasn’t the same as, but was similar to, this book (and other books like it; there are several):

Our therapist said she went with great skepticism, but while there she met parents of some special needs kids she had worked with when they were in the same program Wes was in. And the parents said the reading program worked. The more our therapist listened, the more she started to think that maybe the lady was onto something.

At the time when she told me this I went to the library and checked out the book she recommended. I can’t remember if it’s the same one pictured above. I didn’t read it. Wes was only two and, given where he was at with his speech, I couldn’t comprehend me needing to know anything about how to help him with reading yet. It seemed so far in the future.

Fast forward to now, when Wes is three and in love with letters. We sing and sign the alphabet song when we change diapers, when we’re in the car, when we’re doing anything, really. He likes the Super Why program on PBS that features letters and reading.

Last weekend John and I were casually talking about Wesley’s interest in letters, and he suggested I make some flashcards with words on them. I remembered the reading program the therapist had mentioned. Like I said, I kind of blew it off at the time, but I did remember that one of the keys was writing the words in red. So I made ten flashcards out of card stock and red marker. They featured the words Mom, Dad, Stop, Go, Bus, School, Milk, Red, Sock, and Shoe.

The only other thing I remembered about the program is that it recommended flipping through the flashcards with your kid a few times a day. Just say each one once, and then you’re done.

So I did this. Wes liked it so much that once was never enough. We’d do them again and again.

After a few days I realized he was starting to say the word before I did. I was shocked and amazed! The first time Wes did this I looked over at John, who was watching TV, and said, “Did you hear that? Wes knows the word ‘bus’!” To which John shrugged and said, “Yeah, I know.” Like this was old news. Apparently I was the last to know.

It’s been two weeks since we started the flashcards. We don’t do it every day, but as often as I remember.

Here we are this morning reading the cards together.

He gets most of the words. With the words he knows he usually will accompany saying the word along with making the sign.