On Sunday I had my first experience with someone saying unkind things about Down syndrome and my son. It was the type of thing where I know that the kid (he’s twelve) who said what he said did so out of ignorance and cockiness. He might have even been trying to impress the girl next to her, which shows how immature he is. Even so, it really hurt. It hurt worse than I thought it would. I realized I’m not ready for anyone to imply that my son is less than anyone else, that he’s weird, that he’s alien-like, that he’s different. I can’t handle it yet.
It happened during the Sunday School class that I teach (it’s a tough crowd, that class), and afterward I pulled the kid aside, alone, and told him that he needs to be more respectful and what he said is completely inappropriate. Nonetheless, I couldn’t hold back my tears afterwards.
I guess eventually I’ll have it together enough that other people’s comments won’t phase me. But I’m still adjusting to Wesley’s Down syndrome myself. Most adults are understanding; kids are another story. It’s probably no coincidence that a month before Wes was born John gave me a priesthood blessing in which I specifically remember being told that I needed to have patience, both with my kids and with the people who interact with my kids. It didn’t mean much to me at the time, but now I can really see the wisdom and reality in those words.
On a brighter note, here’s a picture of Wes asleep in my arms.
December 27th, 2007 at 2:20 pm
I don’t get it. Even if you’re 12…how could anyone say anything bad about this cute little boy. Honestly Shannon, he is getting so adorable! I love these new pictures! Isn’t it amazing how much they can change in so short a time. I haven’t looked at all of my blogs for about a month now and when I came to your site I was shocked at the difference. He’s so cute!!
February 26th, 2008 at 12:57 pm
Shannon,
He is a beautiful baby and he is one of the choice children of our Father in Heaven. You will be blessed for all eternity for the gift of having him come to your home. Remember that Heavenly Father sent him to you to teach you and bless you.
Always remember that when you hold him in your arms